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The ALS Ice Bucket Challenge - Young Man Ups Ante Exponentially!

Update: Congratulations and thanks to Lyman and all the other Ice Bucket Challenge participants! Here is news from the Texas Chapter:

The ALS Association Announces Initial Commitment of $21.7 Million from Ice Bucket Challenge Donations to Expedite Search for Treatments and a Cure for ALS

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After the generous outpouring of support from people all over the globe due to this summer’s Ice Bucket Challenge, the Board of Trustees of The ALS Association has approved an initial expenditure of nearly $21.7 million in funding to support six programs and initiatives to expedite the search for treatments and a cure for ALS. ...more
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Wow! You've seen Bill Gates and George W Bush take it and Gwyneth Paltrow in a Bikini, but no one can eclipse Lyman Jones!



Not only did he challenge all of the San Antonio City Council to take the challenge, he led the way taking FOURTEEN BUCKETS of Ice and Water! The local ABC News Station did a special on Lyman, entitled Go Big or Go Home! Click on the image above to see it or here.


You can join Lyman's Lager here! We did and are so proud of him and his dedication to helping defeat ALS through donations to Research! Go Lyman!


Brief Background on this egregious disease from ALS: 

Often referred to as Lou Gehrig's Disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis.

Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.

This crippling disease can strike anyone. Presently there is no known cause of the disease yet it still costs loved ones an average of $200,000 a year to provide the care ALS patients need. Help make a difference and donate or join a walk today.

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Read more about Lyman in the San Antonio Business Journal:

San Antonio ALS patient calls on City Council to take Ice Bucket Challenge
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James Aldridge
Web Editor-San Antonio Business Journal

You may have seen vidoes floating around Facebook for the past several weeks of these celebrity ice bucket challenges that are designed to raise money and awareness for Amyotrophic Lateral Sclerosis, or more commonly known as Lou Gehrig’s Disease.

Celebrities from the likes of Oprah Winfrey,Tyler Perry and Gayle King and even our own local celebrities, San Antonio Spurs guard Tony Parker and Assistant CoachBecky Hammon, have been posting videos on the Internet in an effort to raise awareness of the debilitating disease. Once the celebrity completes the challenge, they then have the opportunity to call out their peers to take the challenge as well as make a financial donation.

At noon today, San Antonio native Lyman M. Jones V, who has been living with the disease for 14 years, will take the ice bucket challenge at the steps of City Hall. And he is planning to call out Rey Feo LXVIJimmy Green as well as members of San Antonio’s City Council to take the challenge along with him.

Instead of doing one bucket of ice, however, Jones will endure the bristling cold of 14 buckets, one for each year he has survived Lou Gehrig’s Disease. Supporters say the fact that he has lived with ALS this long is amazing considering that the average life expectancy of a patient is two to five years once diagnosed. ALS is a progressive neuromuscular disease that takes away a patient’s ability to walk, speak, swallow and eventually breathe. ...more

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We have known and loved Lyman for his entire life, as he is a precious nephew. His spirit, determination, tenacity and character are more than awe-inspiring, as is the support of his incredible family. They are all Super Star Heroes in our and anyone's book! They set the bar so high on every level of life...that we can only wish to emulate.

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Update on the Success of the ALS Ice Bucket Challenge from the Executive Director of the Texas Chapter:

LETTER FROM THE EXECUTIVE DIRECTOR
 
Catch the Spirit of the Giving Season
 
Dear Carolyn,

After spending Thanksgiving reflecting on our blessings, many of us choose to express our gratitude by giving back to others. As the giving season moves into full swing, join us in the spirit by supporting research, care, and hope for people living with ALS.

The Ice Bucket Challenge, which took the country by storm this past summer, increased awareness of ALS and raised more than $115 million in support of The ALS Association. Whether they braved the ice or not, millions of people from around the globe gave generously in support of our vision to create a world without ALS. On behalf of our chapter, I thank everyone who donated this year. 

That outpouring of support has enabled The ALS Association to  triple our spending on research, including an initial expenditure of $21.7 million approved in October to support six initiatives designed to expedite the search for treatments and a cure. 


Your support of our mission is critical. Please make a tax-deductible donation to our chapter this holiday season. Your support will fund the most collaborative, cutting-edge scientific research in the world, care services for people living with ALS in our community and advocacy programs focused on achieving federal and state support for ALS research and care.

Thank you for your generosity and support. On behalf of everyone at the chapter, Happy Holidays to you and your family!​
 
Sincerely, 


Tanner Hockensmith
Executive Director
The ALS Association Texas Chapter











CHAPTER HIGHLIGHTS
 
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NeillsDeals
NeillsDeals | August 27th 2014 at 1409157040

Here is a great article on the Ice Bucket Challenges from LeesburgToday.com
The Disease Behind The Ice Bucket Challenges

http://www.leesburgtoday.com/news/the-disease-behind-the-ice-water-challenges/article_ba88ea14-2deb-11e4-a264-0019bb2963f4.html
(No viruses found in the link)

Unless you have water in your ears, you’ve heard about the ALS ice bucket challenge, a genius marketing campaign that has raised awareness—and close to $80 million—to fund research for the debilitating disease.

Millions have taken the challenge, but few know much about the disease that has them drenching themselves in ice water.

Amyotrophic lateral sclerosis, often referred to as Lou Gehrig's Disease, is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord.

Dr. Seth Tuwiner, a neurologist with Loudoun Medical Group, said “while ALS is not common, when it presents itself it is devastating.”

He diagnoses anywhere from two to 10 patients with ALS each year from his Leesburg practice Neurology Consultant Services. Early symptoms often include increasing muscle weakness, especially involving the arms and legs, speech, swallowing or breathing. About 90 percent of the cases are sporadic and 10 percent are genetic.

There is not yet a known cure for the disease, and it is always fatal, Tuwiner said. Most patients die because of respiratory complications.

“It’s a very hard diagnoses to give to patients because the end result is death,” he said.

Because similar symptoms can mean a patient does not have ALS, Tuwiner advises people to always get an expert opinion. “It’s very important to not self-diagnose.”

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