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Half A Heart Angels

Over a month ago, My Sweet Pregnant Granddaughter (due in Dec.);  Who we raised most of her life, was told by her OBGYN that there might be a problem with the babies heart from what the Doctor saw on a sonogram.  First led to believe it was probably Down ’s syndrome.  They send you to another doctor for a more intense sonogram with a scheduled appt a week away.  So you get to worry and worry all the while praying for an entire week.  I tell her I can’t believe that because she is so young assuming Down’s Syndrome is usually with older women’s pregnancy .

Second Doctor drops the Bomb shell with higher level sonogram; HLHS Hypoplastic Left Heart Syndrome.  The Left side of the heart does not work.  Fatal without surgeries beginning at birth.
But wait - now they need to go to another doctor and yes the appt is a week or so away. This time it’s to a cardiologist.  So for another week you worry and worry and pray for another week. 

Ashley spent countless hours researching and getting information from the internet. We all look to the internet, sometimes it’s beneficial – sometimes it is misleading. But we all do it just the same. The information Highway!  DID YOU KNOW? It’s a 1% chance of babies being born with this!  I had no idea the numbers could possibly be so high.  We’ve never heard of it. There is no history in the family.

Grief process… I found this diagram on the Stages of the Grief process…. so true....

Ashley told me in one of our conversations how she had been so focused on the colors of the linens and things for the nursery room … now that didn’t seem as important. Just broke my heart. 

Cardiologist confirms and shows the sonogram to the parents and they get to see the heart and it’s just as they say, left side isn’t functioning.  She is married to a Soldier, stationed in El Paso.  The Cardiologist explains she will have to move to Dallas for a seriously experienced specialist for the weeks 32 thru the delivery.  At present they are trying to get all the paperwork together and praying for the husband to be able to transfer to a position he can hold in Dallas to be close when Baby Tripp is born. Tripps first surgery at birth and he will be in the hospital at least 3 to 4 weeks minimum.

With Faith of our Lord we will all get through this.  I captured a story from a post about Jesus and his little angels.

So now, Better informed we begin to get involved.  Ashley found a few groups on Facebook and we joined them.  Unbelievable stories, some of great success and some of great sorrow.  Some you read with great positive and wonderful thoughts of what to expect and then some you read and suffer great sorrow. 

For me, I’m trying to get more involved in helping.  I was added to another group by someone I had met in one of the HLHS groups.  CHD Families in Need.

For years I have been so focused on our Veterans-trying to get them the attention they need.  While I will Never stop trying to get more people involved in helping our Veterans, Now I have added yet another quite serious obligation to helping these families.  Some just need help with paying for a headstone, one lady-marriage failed after their child died, struggling to pay the bills and still make payments on the headstone so one day it will be paid in full then finally put it on the child’s grave--just lost her job.  One family who is laying their child to rest today needed help for the funeral cost and food for the reception after the funeral.  And that doesn’t even begin to describe the needs of some of these families.  One child, death is coming, heart attacks daily, dad has to work his job and can’t spend much time at the hospital. Struggling to keep food on the table and yet missing the last weeks or even days being with his child.  It is all so heart breaking.

Our business is struggling more than ever - yet I must keep all things in focus.  Faith in our lord, Faith in the friends that I have made and Faith that some things I post on the internet will get attention and help for so many people and families.   I want to wake up some people to see there are people in need. Veterans who need meals, homes and medical help; Tiny Heart patients with families suffering loss – financial problems - some with no one to help them at all…… Not to forget our critters who look solely to people to take care of them…rescue and help so many.

I’ve never written a blog – the #addoway family keeps posting “write a blog” ”write a blog”.  I’ve never considered that I had something worthy to write about.  I’m not good at asking people to give money.  I get probably 10 or more calls a week at work from people asking for donations, I don’t want to be one of them who has to keep hearing “I can’t right now”.   But I honestly “Can’t right now” - not to all of them.  As much as I want to…..  But the people and families in these groups do so need help. 

So if I can get just a little attention for these amazing families to help them with strength and possibly a donation or two… So be it.

And if you know of Charities or any organization that we can list that may help some of these families, please share it and I’ll see that it gets posted.
So this is my first Blog… Who’d a thought ?!?

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Reader Comments  (23)

Donna's Stuff & More
Donna's Stuff & More | August 22nd 2012 at 1345674762

MaryLola - this is a beautiful blog. My heart goes out in prayer to your little great-grandchild. Bless you for being a rock for your granddaughter. I don't know how you keep it together. Thank you for sharing your story and this information. ♥♥♥
Cargopal | August 22nd 2012 at 1345675445

Thank you so much Donna. I couldn't have done it with out you for sure. Now to get your comments has absolutely made my day. You are a sweetheart for sure. Hugs <3<3<3
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Jay Murrrell   | August 22nd 2012 at 1345686128

ML: What a fortunate granddaughter to have such a special grandmother. You and yours are in our prayers.

Cousin Jay
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MaryLola   | August 22nd 2012 at 1345690811 - in reply to Jay Murrrell

Thank you Jay. She is such a special girl to us... and Baby Tripp is going to be wonderful.
Our first Great Grandson. ;-)
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Mary | August 22nd 2012 at 1345692694

Great blog. First one I ever read. And your entire family will be on our church prayer list starting in the morning. hang in there!
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Lindsey Foster   | August 22nd 2012 at 1345693548

Loved reading this :) great way to not only keep others informed but also to use as a coping/venting method!! I was just telling Ashley about a website: Caring Bridge ---great way to keep all informed along the journey for power in prayer but also to let people know step by step whats going on without having to talk and retell numerous things over and over time and time again!!! Tony, Ashley, and Tripp are only going to be stronger by enduring this journey God has put them on blessed they have a strong support system including yourself!
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Dawn Bailey   | August 22nd 2012 at 1345696084

Oh my Mary Lola! I am so sorry to hear about Tony and Ashley's baby condition! I would like to invite you to come with me to church Sunday but I'm going to call you tomorrow! But I want you to know that I have always loved you and your family (yes even Larry! Lol!) and I will keep you in my prayers!
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Kris Ferretti | August 23rd 2012 at 1345718763

This is awesome! I had no idea and I am so sorry to hear this! It seems that everyone has their own battles, but, as you say, if we continue to lean on the Lord, we know he will be there to help us through. God bless you and all of your family and you will continue to be in my prayers and thoughts.
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MaryLola   | August 23rd 2012 at 1345731585 - in reply to Lindsey Foster

Lindsey, Thank you so much. I really wrote this to get more people aware - the 1% I thought was huge. I'm 57 and never heard of this. But you are so right about a coping/venting outlet. I'll get with Ashley on the Caring Bridge too. Thanks. I met a grandmother the other day who had a link there on her grandson who was turning 2 now and having his 3rd surgery. Thank you so much for the prayers too. You are a great friend. Hugs for sure;)
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MaryLola   | August 23rd 2012 at 1345731705 - in reply to Dawn Bailey

Dawn, you are so sweet and wonderful. You know we have always loved you like family as well. Thank you so much for being there - a great friend. Thank you so much for the prayers too.. Love you.... talk soon.
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MaryLola | August 23rd 2012 at 1345732161

Mary, Kris, Thank you both for your prayers. It is most graciously appreciated. Thank you very much.
Royal Presence
Royal Presence | August 23rd 2012 at 1345756610

It is wonderful that you can help out with your research and connecting with others for your granddaughter and the family. Will say prayers for all ~ Vaya con Dios.
Cargopal | August 23rd 2012 at 1345757592 - in reply to RoyalPresence

Thank you so much. Appreciate your comments. And Absolutely Thank you for your prayers, we are so grateful..... Have an awesome day...
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Avis (your sister)   | August 24th 2012 at 1345838734

M.L. - Just got to read your blog... we've shared most of the "stages on the grief chart" by phone already, but I wanted to tell you... how much love and admiration I have for you, not only through the tough times, but day after day. I'm the "big" sister that can always turn to you for perspective, solice; well just anything! You are such a rock, I only hope that I am able to "bolster" you sometimes. When my Pete died, it's been almost 10 years now, I just, quite simply, wouldn't have made it without you! Now, good news; bad news, even no real news I depend on you being at the other end of the phone line. Along with being just wonderful "you", you're every good trait Mom possessed. I see so much of her in you, even more as we "get older".
Know that I will be here for you, always, if ever you have a need I can fill.
Folks say I have a knack for writing, bah... your blog puts me in the is so well done. Keep up the output...'cause what you have to say is important and you say it well.
Love ya lots,
Ever so Grateful to have you for a sister and friend,
Cargopal | August 24th 2012 at 1345846856 - in reply to Avis (your sister)

After a good cry... Wow.. Amazing and wonderful heartfelt to say the least. Thank you so much. You're the creative one and your compliments are awesome. I know you are there always and I thank you so much.
Like Mom always said "Just this life and one more!"
Love you lots and absolutely grateful for our friendship.
A very proud sister I am.
Love you always. | September 7th 2012 at 1347021174

You think you have problems . . . and then you meet someone who has real problems. My thoughts and prayers are with you and your entire family during the coming months and years. God bless you all.
Cargopal | September 7th 2012 at 1347026304 - in reply to catsmom

Thank you so much. Absolutely appreciate the prayers. We'll take all we can get. It's in God's hands, we just have to have faith. You are so sweet to read and post. So many babies born with this and most people don't know about it. Social Networking is a great avenue to boost awareness.

Thank you again,
Much appreciation,
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FancyDudsNStuff | September 7th 2012 at 1347048073

I cried when I read you blog....beautifully written, and I will certainly pray for you and your family.....I am a great believer that prayer works....I have seen it work many, many times!!! My great granddaughter was born with kidney reflux but God has worked miracles in her life....she is now four and doing great, and never had to have any surgery, and we give God All The Glory!!! I will add you to my personal prayer list.
Cargopal | September 7th 2012 at 1347054227

Oh Thank you so very much. We certainly appreciate all prayers. Thank goodness for your Great Granddaughters success. May you be blessed for all her years to come to stay healthy and safe. God is so good. Thank you for taking the time to read and post, it sure means a lot to us. I didn't mean to make anyone cry, I just wanted to tell my feelings, I think it has helped me personally. There are so many wonderful people out there, just like you. We'll keep your Great Granddaughter in our prayers as well. Thank you again, praise God's Glory for sure. Hugs and great thanks.
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Mitzi   | October 9th 2012 at 1349807605


I am so sorry to hear your news. I am sending prayers right away! I am so glad that your Granddaughter has you in her corner. With your strength, things, I'm sure will turn out for the best. I can't imagine how you guys are feeling but I can tell you that we are all thinking of you guys. Thoughts and prayers to you and your family. Good things coming your way!!!!!!! I just know they are!

Love and hugs,
Mitzi and Family
Cargopal | October 9th 2012 at 1349810081

Thanks so much Mitzi. So appreciate you, your friendship and absolutely your prayers. God is on our side... It has been a big pill to swallow but it's going to be just wonderful and sweet Tripp is going to have so many people praying for him that we will be strong because of for sure. Seems like the time is speeding so fast...
Thanks so much girl.
Hope your day is going great....
Lots of Love and Hugs back to you.
Avocado Lane
Avocado Lane | November 30th 2012 at 1354330276

Sending thoughts and Prayers for you all.
Cargopal | January 22nd 2013 at 1358880759

I discovered this post in an email that I had obviously missed. Thank you so much for your thoughts and prayers. You are greatly appreciated.

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