Over a month ago, My Sweet Pregnant Granddaughter (due in Dec.); Who we raised most of her life, was told by her OBGYN that there might be a problem with the babies heart from what the Doctor saw on a sonogram. First led to believe it was probably Down ’s syndrome. They send you to another doctor for a more intense sonogram with a scheduled appt a week away. So you get to worry and worry all the while praying for an entire week. I tell her I can’t believe that because she is so young assuming Down’s Syndrome is usually with older women’s pregnancy .
Second Doctor drops the Bomb shell with higher level sonogram; HLHS Hypoplastic Left Heart Syndrome. The Left side of the heart does not work. Fatal without surgeries beginning at birth.
But wait - now they need to go to another doctor and yes the appt is a week or so away. This time it’s to a cardiologist. So for another week you worry and worry and pray for another week.
Ashley spent countless hours researching and getting information from the internet. We all look to the internet, sometimes it’s beneficial – sometimes it is misleading. But we all do it just the same. The information Highway! DID YOU KNOW? It’s a 1% chance of babies being born with this! I had no idea the numbers could possibly be so high. We’ve never heard of it. There is no history in the family.
Grief process… I found this diagram on the Stages of the Grief process…. so true....
Ashley told me in one of our conversations how she had been so focused on the colors of the linens and things for the nursery room … now that didn’t seem as important. Just broke my heart.
Cardiologist confirms and shows the sonogram to the parents and they get to see the heart and it’s just as they say, left side isn’t functioning. She is married to a Soldier, stationed in El Paso. The Cardiologist explains she will have to move to Dallas for a seriously experienced specialist for the weeks 32 thru the delivery. At present they are trying to get all the paperwork together and praying for the husband to be able to transfer to a position he can hold in Dallas to be close when Baby Tripp is born. Tripps first surgery at birth and he will be in the hospital at least 3 to 4 weeks minimum.
With Faith of our Lord we will all get through this. I captured a story from a post about Jesus and his little angels.
So now, Better informed we begin to get involved. Ashley found a few groups on Facebook and we joined them. Unbelievable stories, some of great success and some of great sorrow. Some you read with great positive and wonderful thoughts of what to expect and then some you read and suffer great sorrow.
For me, I’m trying to get more involved in helping. I was added to another group by someone I had met in one of the HLHS groups. CHD Families in Need.
For years I have been so focused on our Veterans-trying to get them the attention they need. While I will Never stop trying to get more people involved in helping our Veterans, Now I have added yet another quite serious obligation to helping these families. Some just need help with paying for a headstone, one lady-marriage failed after their child died, struggling to pay the bills and still make payments on the headstone so one day it will be paid in full then finally put it on the child’s grave--just lost her job. One family who is laying their child to rest today needed help for the funeral cost and food for the reception after the funeral. And that doesn’t even begin to describe the needs of some of these families. One child, death is coming, heart attacks daily, dad has to work his job and can’t spend much time at the hospital. Struggling to keep food on the table and yet missing the last weeks or even days being with his child. It is all so heart breaking.
Our business is struggling more than ever - yet I must keep all things in focus. Faith in our lord, Faith in the friends that I have made and Faith that some things I post on the internet will get attention and help for so many people and families. I want to wake up some people to see there are people in need. Veterans who need meals, homes and medical help; Tiny Heart patients with families suffering loss – financial problems - some with no one to help them at all…… Not to forget our critters who look solely to people to take care of them…rescue and help so many.
I’ve never written a blog – the #addoway family keeps posting “write a blog” ”write a blog”. I’ve never considered that I had something worthy to write about. I’m not good at asking people to give money. I get probably 10 or more calls a week at work from people asking for donations, I don’t want to be one of them who has to keep hearing “I can’t right now”. But I honestly “Can’t right now” - not to all of them. As much as I want to….. But the people and families in these groups do so need help.
So if I can get just a little attention for these amazing families to help them with strength and possibly a donation or two… So be it.
And if you know of Charities or any organization that we can list that may help some of these families, please share it and I’ll see that it gets posted.
So this is my first Blog… Who’d a thought ?!?